NDIS might have paid $100 for my disabled sister’s mat. We paid $5

June 25, 2026 — 5:30pm

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Devastating hardly covers the effect that a diagnosis of Parkinson’s disease had on my dear twin sister when she was in her late 40s. A retired nurse, Louise knew it was incurable and progressive, and symptom management is fraught with complications.

Every small task for her is frustratingly difficult or impossible now – moving, eating, washing, dressing, reading. Her life is marked by sequential losses. But the one thing that has made her life bearable, so far, has been the assistance and companionship she receives from carers funded through the National Disability Insurance Scheme.

This has enabled me to keep working as a GP, seeing mainly vulnerable people and those with chronic and complex needs; it also means my sister has been able to continue living with us.

Our NDIS journey began with an email search for an application form – no such luck, so I phoned the National Disability Insurance Agency, the authority that manages the scheme.

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“Oh, no, you can’t access the form online,” I was told. “We need to ask you specific questions.”

“OK,” I said, “what do you need to know?”

I presume such tactics are used to test desperate........

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