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A 21-year-old kept her symptoms secret out of embarrassment and it led to a life-changing diagnosis

16 0
20.04.2026

Alex Lyons is on a mission to make sure no one else suffers in silence. The 21-year-old from Armagh, Northern Ireland, spent months hiding a secret that she feared was too “gross” or “humiliating” to share with her friends and family. But as the BBC reported, that silence nearly cost her everything.

@alex.lyonss What is a stoma? I hope I answered that clearly enough in this video! Thank you all for all of your questions I will answer all of them shortly! ♬ original sound – Alex Lyons

What is a stoma? I hope I answered that clearly enough in this video! Thank you all for all of your questions I will answer all of them shortly! ♬ original sound – Alex Lyons

The health costs of staying silent with IBD

Lyons first noticed she was having frequent, urgent bowel movements and spotted blood in her stool. Instead of seeking help, she ignored the signs, hoping they would simply go away. Her hesitation was rooted in a deep sense of embarrassment and a desire to protect her family. Her twin brother, Joe, had recently undergone bowel removal surgery due to a chronic condition, and Alex didn’t want to put her parents through that trauma a second time.

@alex.lyonss IM GOING HOME!! Thank you thank you thank you for all of the kindess and support you have all shown me I am beyond grateful! Wow! I love you all! ♬ original sound – Alex Lyons

IM GOING HOME!! Thank you thank you thank you for all of the kindess and support you have all shown me I am beyond grateful! Wow! I love you all! ♬ original sound – Alex Lyons

Unfortunately, the symptoms of inflammatory bowel disease (IBD) do not wait for a convenient time to be addressed. By the time Alex finally disclosed her struggle, her condition had progressed to a life-threatening level. She was diagnosed with ulcerative colitis, a form of IBD that causes chronic inflammation and ulcers in the lining of the colon. According to the Cleveland Clinic, these symptoms are often caused by an overactive immune response, and as seen in the case of Alex and her brother, genetic factors often play a significant role.

The inflammation was so aggressive that standard treatments could no longer save her bowel. She was rushed into emergency surgery, a procedure that saved her life but changed it forever. “I think I would have gone a little longer without losing my bowel had I gone to the doctor earlier,” Alex told the BBC.

From ambulance to advocacy

Now, Alex is using her voice to dismantle the stigma that kept her silent. She has become a viral advocate on TikTok, documenting her life with a stoma bag and showing her followers that a medical diagnosis doesn’t mean the end of a vibrant life. She refuses to let her condition stop her from wearing her favorite clothes or going out with friends.

@alex.lyonss My first shower in 7 weeks!! Kinda crazy lol. When you’re on deaths door a shower is the least of your worries trust me! This disease has taken alot from me but it won’t take my pamper days! #stoma #ulcerativecolitis #recovery #pamper ♬ original sound – Alex Lyons

My first shower in 7 weeks!! Kinda crazy lol. When you’re on deaths door a shower is the least of your worries trust me! This disease has taken alot from me but it won’t take my pamper days! #stoma #ulcerativecolitis #recovery #pamper ♬ original sound – Alex Lyons

Speaking out about Ulcerative Colitis

The lesson Alex wants to share is simple but vital: speaking up sooner matters more than avoiding a few minutes of discomfort. What might seem like a minor, embarrassing issue can develop into a serious health crisis if left unaddressed. As Alex and her brother continue their healing journey together, they are proving that there is no room for shame when it comes to saving your own life.

Follow Alex Lyons (@alex.lyonss) on TikTok for more content on health and lifestyle. 

A single door can open up a world of endless possibilities. For homeowners, the front door of their house is a  gateway to financial stability, job security, and better health. Yet for many, that door remains closed. Due to the rising costs of housing, 1 in 3 people around the world wake up without the security of safe, affordable housing. 

Since 1976, Habitat for Humanity has made it their mission to unlock and open the door to opportunity for families everywhere, and their efforts have paid off in a big way. Through their work over the past 50 years, more than 65 million people have gained access to new or improved housing, and the movement continues to gain momentum. Since 2011 alone, Habitat for Humanity has expanded access to affordable housing by a hundredfold. 

A world where everyone has access to a decent home is becoming a reality, but there’s still much to do. As they celebrate 50 years of building, Habitat for Humanity is inviting people of all backgrounds and talents to be part of what comes next through Let’s Open the Door, a global campaign that builds on this momentum and encourages people everywhere to help expand access to safe, affordable housing for those who need it most. Here’s how the foundation to a better world starts with housing, and how everyone can pitch in to make it happen. 

Globally, almost 3 billion people, including 1 in 6 U.S. families, struggle with high costs and other challenges related to housing. A crisis in itself, this also creates larger problems that affect families and communities in unexpected ways. People who lack affordable, stable housing are also more likely to experience financial hardship in other areas of their lives, since a larger share of their income often goes toward rent, utilities, and frequent moves. They are also more likely to experience health problems due to chronic stress or environmental factors, such as mold. Housing insecurity also goes hand-in-hand with unstable employment, since people may need to move further from their jobs or switch jobs altogether to offset the cost of housing. 

Affordable homeownership creates a stable foundation for families to thrive, reducing stress and increasing the likelihood for good health and stable employment. Habitat for Humanity builds and repairs homes with individual families, but it also strengthens entire communities as well. The MicroBuild® Initiative, for example, strengthens communities by increasing access to  loans for low-income families seeking to build or repair their homes. Habitat ReStore locations provide affordable appliances and building materials to local communities, in addition to creating job and volunteer opportunities that support neighborhood growth. 

Everyone can play a part in the fight for housing equity and the pursuit of a better world. Over the past 50 years, Habitat for Humanity has become a leader in global housing thanks to an engaged network of volunteers—but you don’t need to be skilled with a hammer to make a meaningful impact. Building an equitable future means calling on a wide range of people and talents.Here’s how you can get involved in the global housing movement:

Speaking up on social media about the growing housing crisis 

Volunteering on a Habitat for Humanity build in your local community

Travel and build with Habitat in the U.S. or  in one of 60   countries where we work around the globe

Join the Let’s Open the Door movement and, when you donate, you can create your own personalized door 

Shop or donate at your local Habitat ReStore

Every action, big and small, drives a global movement toward a better future. A safe home unlocks opportunity for families and communities alike, but it’s volunteers and other supporters, working together with a shared vision, who can open the door for everyone. 

Visit habitat.org/open-door to learn more and get involved today. 

Richard Bernstein walked around barefoot a lot at home, so when his right toe started hurting in 2017, he assumed he’d stubbed it. A visit to his podiatrist confirmed nothing was broken and nothing was wrong. He moved on.

Five years of pain that no one could explain

Over the next few years it crept upward from his toe to his ankle, then to his knee. A sports medicine doctor suggested stenosis and recommended physical therapy. That didn’t help either. Walking became gradually harder. On a trip to Greece, Bernstein had to sit out while his friends climbed to hilltop monasteries. He took his dog to the park less and less.

In March 2022, his right leg swelled noticeably. His doctor ordered an abdominal scan. What it found changed everything.

What they found when they finally looked

Bernstein had a massive cancerous kidney tumor that had grown into his vena cava, the main vein that returns blood from the lower body to the heart. The tumor and tumor thrombus were a foot long and weighed around two and a half pounds. Because the vena cava was almost completely blocked, blood was backing up in his lower extremities, which explained the years of unexplained pain creeping up his right side. His two main coronary arteries had also been compromised, with 99 percent of their function lost.

He was referred to Dr. Michael Grasso, chair of urology at Phelps Hospital. Grasso’s assessment was direct. “He told me I had four days to live,” Bernstein said.

A 12-hour surgery, three specialists, one chance

The surgery required three specialists working simultaneously over 12 hours at Lenox Hill Hospital in New York City. Dr. Grasso handled the kidney and tumor removal. Cardiothoracic surgeon Dr. Jonathan Hemli performed a double bypass on the coronary arteries, which had been discovered only once Bernstein was already admitted, an unexpected complication that Hemli said they couldn’t ignore. “It would have been really disappointing to cure him of his kidney cancer only to learn in six months, nine months, a year that the poor man had a heart attack and didn’t survive,” Hemli told TODAY. Vascular surgeon Dr. Alfio Carroccio opened the vena cava to remove the tumor thrombus, which extended all the way into the heart.

To do the work safely, the team had to cool Bernstein’s body, stop his heart, and run him on a heart-lung bypass machine while they operated. Then they slowly warmed him back up and restarted his heart.

Bernstein spent three days sedated afterward, a week in intensive care, and nearly three weeks in cardiac rehab relearning to walk. He lost around 30 pounds. He gained it back.

He’s now on ongoing immunotherapy and doing twice-yearly scans. Dr. Grasso’s update: “The cancer hasn’t spread anywhere else, which is amazing, considering where he came from.”

Bernstein’s own assessment of how he got through it: “My attitude is ‘it is what it is, and there’s not much we can do about it.’ That got me through.” His advice for anyone else in a similar situation: “If something is wrong and they can’t find it, don’t give up looking. Trust your feelings about your own body.”

And on the swollen leg that finally triggered the scan that saved him: “If my whole leg hadn’t swollen up, I would have dropped dead.”

Death is a mystery in so many ways, despite the fact that we all know for sure it’s going to happen. We don’t know when we will go and can’t really be sure of what comes next, so whether we’re thinking about ourselves or a loved one, there’s understandably a lot of fear and uncertainty around death.

That’s why Julie McFadden’s work is so important. As a palliative care nurse in the Los Angeles area, who has seen over a hundred people die, her videos shed light on the process to make us all a bit more comfortable with the inevitable. McFadden is also the author of the bestseller, “Nothing to Fear.” The nurse’s experience helping people in their final stages has given her a unique perspective on the process.

In one video, she shared how she can see the first symptoms that someone is going to die a natural death about 6 months before they finally do. In other words, she can determine........

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