'The Most Heartbreaking Time Of My Life': Jesy Nelson Opens Up About Twins' SMA Type 1 Diagnosis |
Jesy Nelson
Jesy Nelson is opening up about her twin daughters’ diagnosis of spinal muscular atrophy (SMA).
The genetic condition is characterised by weakness and wasting in the skeletal muscles, which causes severe problems with movement.
In a candid Instagram video, the singer said her mum previously noticed her daughters’ legs weren’t moving “as they should be”, but she hadn’t been too concerned as they were born prematurely and medical staff had mentioned they would develop at their own pace.
However when her twins, Ocean Jade and Story Monroe, began to struggle with feeding, they sought help and “after the most gruelling three, four months, and endless appointments, the girls have now been diagnosed with a severe muscle disease called SMA type 1”, the singer revealed.
View this post on InstagramWhat is SMA type 1?
SMA is usually grouped into types, based on the person’s age when the symptoms occur, and how they affect sitting, standing and walking.
SMA type 1, also known as Werdnig-Hoffman disease, usually occurs in babies less than six months old.
Per the NHS, symptoms can include:
muscle weakness – such as floppy or weak arms and........